Long Way From Home
Field Notes From A Stem Cell Transplant
Category: Post Transplant (Day +18 – Day +100)
“Post Transplant (Day +18 – Day +100)” is a collection of posts that occur after my discharge date, and up to the 100 day post-transplant milestone.
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Day +100 is one of the major milestones in the transplant process, and I’m very happy to say I’ve finally reached it. This milestone comes with the loosening of some restrictions, which is great, but also with the added anxiety of more testing, tapering key medications, and everything else that comes next. I’ve made a…
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If I had to summarize briefly how this chunk of time has been, I’d say that it has been slightly frustrating in some areas, and encouraging in others. At the end of the day, I still think this period brought more progress than setbacks though, and that’s really all I can ask for. Anyways, let’s…
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This post will be a brief overview of my experience as a guest at Boston’s Hope Lodge. When I was planning all the details before transplant, I knew that staying nearby afterward would probably be in my best interest, both for convenience and for safety. The Hope Lodge offers free housing for patients receiving treatment…
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Just like that, I’ve reached day +50. Medically, there isn’t much significance to this milestone, but mentally it feels really good. Most of the heavier post-transplant restrictions, barring any major setbacks, should start to lift around day +100, so being halfway there already is encouraging. Anyway, it’s been about two to three weeks since my…
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Welcome back! After some thought, I’ve decided this will be the last of the “weekly update” style field notes. The updates aren’t ending, but now that I’m through the initial 30 days, I want to shift to a more sustainable model. Going forward, I’ll be posting updates around key milestones like Day +50, Day +75,…
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Field note #5. Alternative title: “life out of a hotel room.” Not quite as glamorous as it sounds, but we’re right down the road from the hospital and will be here until a spot opens up at the Hope Lodge. Jokes aside, it was a good week, full of early recovery milestones and encouraging news…
Long Way From Home 