Long Way From Home
Field Notes From A Stem Cell Transplant
Category: All
“All” is exactly what it sounds like. A collection of my posts from start to finish.
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Welcome back. Today’s post will likely be a bit longer and more technical than the first, as I want to take the time to explain more about the genetic disorder I was diagnosed with. If you haven’t had a chance to read the first post, I would recommend doing that now. It’s a relatively quick…
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Hi there. My name is Ethan. I’m 24 years old, and I currently live in Connecticut. Six months ago, in January 2025, I was diagnosed with a rare genetic condition known as GATA2 deficiency. I’ll be going into more detail about the diagnosis in the next post, but for now, the key thing to know…